{"id":15359,"date":"2012-04-01T00:00:00","date_gmt":"2012-03-31T22:00:00","guid":{"rendered":"http:\/\/ricom-web.com\/gestions-hospitalieres\/la-tumorotheque-a-lheure-virtuelle\/"},"modified":"2018-03-08T16:08:56","modified_gmt":"2018-03-08T15:08:56","slug":"la-tumorotheque-a-lheure-virtuelle","status":"publish","type":"post","link":"https:\/\/www.ricom-web8.com\/gestions\/la-tumorotheque-a-lheure-virtuelle\/","title":{"rendered":"La tumoroth\u00e8que \u00e0 l\u2019heure virtuelle"},"content":{"rendered":"<span class=\"span-reading-time rt-reading-time\" style=\"display: block;\"><span class=\"rt-label rt-prefix\">Temps de lecture\u00a0: <\/span> <span class=\"rt-time\"> 3<\/span> <span class=\"rt-label rt-postfix\">minutes<\/span><\/span><p class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">Lors du premier plan Cancer, en 2003, le territoire national a \u00e9t\u00e9 d\u00e9coup\u00e9 en sept canc\u00e9rop\u00f4les regroupant les centres hospitaliers universitaires (CHU) et les centres r\u00e9gionaux de lutte contre le cancer (CRLCC). Parall\u00e8lement, dans le cadre des appels \u00e0 projets nationaux lanc\u00e9s par la Direction de l\u2019hospitalisation et de l\u2019organisation des soins (Dhos) et l\u2019Institut national du cancer (Inca) de 2001 \u00e0 2005, cinq tumoroth\u00e8ques, labellis\u00e9es, ont \u00e9t\u00e9 cr\u00e9\u00e9es dans l\u2019interr\u00e9gion du canc\u00e9rop\u00f4le Nord-Ouest\u00a0:\u00a0<\/span><\/p>\n<ul>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">au CHU d\u2019Amiens (Picardie)\u00a0;\u00a0<\/span><\/li>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">au CHU et au CRLCC Fran\u00e7ois-Baclesse de Caen (Basse-Normandie)\u00a0;\u00a0<\/span><\/li>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">au centre hospitalier de Lens (Nord\/Pas-de-Calais)\u00a0;\u00a0<\/span><\/li>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">au CHRU et au CRLCC Oscar-Lambret de Lille (Nord\/Pas-de-Calais)\u00a0;\u00a0<\/span><\/li>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">au CHU et au CRLCC Henri-Becquerel de Rouen (Haute-Normandie).\u00a0<\/span><\/li>\n<\/ul>\n<p class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">En 2006, l\u2019Inca a ouvert ces tumoroth\u00e8ques \u00e0 l\u2019ensemble des \u00e9tablissements de soins (priv\u00e9s ou publics) prenant en charge des patients atteints d\u2019un cancer. C\u2019est ainsi qu\u2019ont \u00e9t\u00e9 cr\u00e9\u00e9s dans un but sanitaire le R\u00e9seau haut-normand d\u2019acc\u00e8s \u00e0 la tumoroth\u00e8que (Rhat) et le R\u00e9seau tumoroth\u00e8ques Nord\/<br \/>\nPas-de-Calais.<\/span><\/p>\n<p class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">Les collections tissulaires se sont constitu\u00e9es et le stockage des pr\u00e9l\u00e8vements tumoraux congel\u00e9s s\u2019est peu \u00e0 peu d\u00e9velopp\u00e9. Cependant, le but premier de ces unit\u00e9s de cryopr\u00e9servations tissulaires n\u2019est pas d\u2019emmagasiner, tel un collectionneur, ces pr\u00e9cieux \u00e9chantillons. En r\u00e9pondant aux appels d\u2019offres qui ont permis leur financement, ces tumoroth\u00e8ques se sont engag\u00e9es \u00e0 assurer la qualit\u00e9 et la tra\u00e7abilit\u00e9 des \u00e9chantillons biologiques humains cryopr\u00e9serv\u00e9s, \u00e0 y associer des annotations cliniques dynamiques mais aussi \u00e0 fonctionner en r\u00e9seau. En effet, les tumoroth\u00e8ques labellis\u00e9es Inca ont, apr\u00e8s l\u2019objectif de soins, un objectif de recherche. L\u2019utilisation d\u2019\u00e9chantillons \u00e0 des fins scientifiques est ainsi possible si le patient en a \u00e9t\u00e9 pr\u00e9alablement inform\u00e9 et qu\u2019il n\u2019a pas exprim\u00e9 son opposition.<\/span><\/p>\n<p class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">Le canc\u00e9rop\u00f4le Nord-Ouest a donc d\u00e9cid\u00e9 de s\u2019\u00e9quiper d\u2019un outil informatique de gestion de donn\u00e9es pour centraliser les informations des tumoroth\u00e8ques d\u2019Amiens, de Caen, Lille et Rouen. Les diff\u00e9rents acteurs du canc\u00e9rop\u00f4le ont r\u00e9dig\u00e9 un cahier des charges d\u00e9taill\u00e9 pour d\u00e9finir de mani\u00e8re exhaustive les besoins de chacun. Le\u00a0syst\u00e8me informatique retenu apr\u00e8s appel d\u2019offres est le logiciel HC CRB, d\u00e9velopp\u00e9 par HC Forum, d\u00e9j\u00e0 choisi par l\u2019Assistance publique-H\u00f4pitaux de Marseille (AP-HM). <\/span><span class=\"char-TC_txt-Local-10\">La tumoroth\u00e8que de Caen, \u00e9quip\u00e9e d\u2019un autre logiciel de bases de donn\u00e9es, participe au projet mais ne sera pas \u00e9quip\u00e9e du nouveau logiciel HC CRB.<br \/>\n<\/span><span class=\"char-TC_txt-Local-10\">La tumoroth\u00e8que virtuelle du canc\u00e9rop\u00f4le Nord-Ouest (TVCNO) doit remplir quatre missions\u00a0:\u00a0<\/span><\/p>\n<ul>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">organiser l\u2019acc\u00e8s \u00e0 un syst\u00e8me de gestion des tumoroth\u00e8ques pour tous les \u00e9tablissements de sant\u00e9 du canc\u00e9rop\u00f4le Nord-Ouest disposant d\u2019une tumoroth\u00e8que labellis\u00e9e\u00a0;\u00a0<\/span><\/li>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">mettre \u00e0 disposition pour les chercheurs du canc\u00e9rop\u00f4le des informations statistiques sur le contenu des tumoroth\u00e8ques relevant du canc\u00e9rop\u00f4le\u00a0;\u00a0<\/span><\/li>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">organiser l\u2019envoi de donn\u00e9es \u00e0 la tumoroth\u00e8que virtuelle nationale\u00a0;\u00a0<\/span><\/li>\n<li class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">organiser la promotion des actions concert\u00e9es entre les tumoroth\u00e8ques.\u00a0<\/span><\/li>\n<\/ul>\n<p class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">Ce logiciel permet de r\u00e9pertorier tous les pr\u00e9l\u00e8vements stock\u00e9s au sein du canc\u00e9rop\u00f4le, en enregistrant des informations sur le patient, sur le pr\u00e9l\u00e8vement (nature, conditionnement, produits d\u00e9riv\u00e9s\u2026) et la pathologie. Cet outil performant permet une tra\u00e7abilit\u00e9 syst\u00e9matique et exhaustive de l\u2019\u00e9chantillon, du pr\u00e9l\u00e8vement chirurgical au stockage dans les cong\u00e9lateurs \u00e0 -80\u00b0C avec, en outre, un volet de \u00ab\u00a0non-conformit\u00e9\u00a0\u00bb. Un module indispensable de requ\u00eatage ex\u00e9cute des requ\u00eates multiples \u00e0 la demande, en quelques clics, enregistrables et exploitables. Des fiches de suivi clinique \u00e9labor\u00e9es en partenariat avec les cliniciens sont actuellement en cours de r\u00e9alisation.<\/span><\/p>\n<p class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">L\u2019h\u00e9bergeur informatique, le Syndicat interhospitalier d\u2019informatique hospitali\u00e8re (SIIH), se trouve \u00e0 Lille. Le syst\u00e8me HC CRB est reli\u00e9 aux serveurs informatiques des \u00e9tablissements hospitaliers et communique avec les syst\u00e8mes de gestion des laboratoires des services d\u2019anatomie-pathologie (Apix pour Rouen, Diamic pour Lille et Amiens). Les diff\u00e9rents tests de d\u00e9ploiement (mise en ordre de marche, v\u00e9rification d\u2019aptitude et validation service r\u00e9gulier) de l\u2019application ont \u00e9t\u00e9 r\u00e9alis\u00e9s courant 2009 et d\u00e9but 2010. Apr\u00e8s une phase de param\u00e9trage site par site, une phase de r\u00e9cup\u00e9ration des donn\u00e9es au sein des bases de donn\u00e9es pr\u00e9existantes dans les diff\u00e9rents \u00e9tablissements a d\u00e9marr\u00e9. Le logiciel est aujourd\u2019hui en cours d\u2019installation au sein des diff\u00e9rents sites du canc\u00e9rop\u00f4le Nord-Ouest.\u00a0 Ce logiciel permet ainsi une meilleure lisibilit\u00e9 des collections pour l\u2019ensemble des acteurs du canc\u00e9rop\u00f4le. Or, pour promouvoir la recherche, il faut rendre \u00ab\u00a0visibles\u00a0\u00bb les collections d\u2019\u00e9chantillons pour le monde de la recherche. C\u2019est pour r\u00e9pondre \u00e0 cette probl\u00e9matique qu\u2019a germ\u00e9 la notion des tumoroth\u00e8ques virtuelles\u00a0: il s\u2019agit de v\u00e9ritables catalogues d\u2019\u00e9chantillons (tissus tumoraux et\/ou tissus sains) disponibles et consultables sur Internet.<\/span><\/p>\n<p class=\"para-TC_txt\"><span class=\"char-TC_txt-Local-10\">De mani\u00e8re synergique, l\u2019Inca finalise un projet de tumoroth\u00e8que virtuelle nationale, qui sera d\u00e9di\u00e9 \u00e0 l\u2019affichage des pr\u00e9l\u00e8vements qui entreront dans le cadre de programmes de recherche nationaux. Parall\u00e8lement, les diff\u00e9rents canc\u00e9rop\u00f4les d\u00e9veloppent leur propre tumoroth\u00e8que virtuelle r\u00e9gionale (TVR)\u00a0: ceux de Provence-Alpes-C\u00f4te-d\u2019Azur (PACA), Grand Sud-Ouest et Grand-Est ont mis en ligne leur propre TVR. La tumoroth\u00e8que du canc\u00e9rop\u00f4le Nord-Ouest sera elle aussi enti\u00e8rement s\u00e9curis\u00e9e, avec un acc\u00e8s utilisateur \u00ab\u00a0simple\u00a0\u00bb et un acc\u00e8s utilisateur \u00ab\u00a0\u00e0 droit d\u2019acc\u00e8s\u00a0\u00bb. Un formulaire de demande de projet sera t\u00e9l\u00e9chargeable. Une importante action de communication sera mise en place afin d\u2019inciter les chercheurs \u00e0 se rendre sur le site de la TVR Nord-Ouest, l\u2019objectif \u00e9tant de stimuler la recherche translationnelle pour le b\u00e9n\u00e9fice direct des patients.<\/span><\/p>\n<script>function PlayerjsAsync(){} if(window[\"Playerjs\"]){PlayerjsAsync();}<\/script>","protected":false},"excerpt":{"rendered":"<p><span class=\"span-reading-time rt-reading-time\" style=\"display: block;\"><span class=\"rt-label rt-prefix\">Temps de lecture\u00a0: <\/span> <span class=\"rt-time\"> 3<\/span> <span class=\"rt-label rt-postfix\">minutes<\/span><\/span>\ufeffLe canc\u00e9rop\u00f4le Nord-Ouest a d\u00e9velopp\u00e9 un outil informatique commun \u00e0 quatre r\u00e9gions fran\u00e7aises couvrant un bassin de population de 9 millions de personnes : la tumoroth\u00e8que virtuelle du canc\u00e9rop\u00f4le Nord-Ouest assure aujourd\u2019hui la gestion des \u00e9chantillons cryopr\u00e9serv\u00e9s au service des \u00e9tablissements sp\u00e9cialis\u00e9s dans les soins et la recherche en canc\u00e9rologie.<\/p>\n","protected":false},"author":1202,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[26,2],"tags":[612,611,96,36,613],"class_list":["post-15359","post","type-post","status-publish","format-standard","hentry","category-dossier","category-gestions-hospitalieres","tag-cancerologie","tag-canceropole-nord-ouest","tag-fonctionnement","tag-organisation","tag-tumorotheque-virtuelle-regionale"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.8.1 - 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